Why I Write/Blog

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I am staring at the blank computer screen, having writer’s block. After three years of actively blogging I am stuck for a topic, even though my life is expansive on writing material.  From my desk I can hear the birds chirping, the slight spring breeze wafts through my open window.  My family is out for a quick journey. I have the time I crave to finally write. And I am stuck.

I think back to when I first started to write. My oldest was just a baby when I realized that I was approaching the age that my mother died. Not knowing her stories in her own words motivated me scribe mine, in case I had the same fate or if I forgot things. As the years pass fast being a mom there are minute details that have escaped me.

Writing also was a way to vent my isolation on being motherless, not having family to help the day-to-day and when my youngest was diagnosed with autism. Writing my blog began to bridge the gap that I felt. A void was there that slowly dissipated, especially when readers began to comment.

With a smile, I begin to type. I never profess to writing well or being a literary author. I write for my girls, other moms and most importantly for me. No one can tell my stories but me.

 

The First time I Left Her at Camp: Chance to WIN!

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“With my heart beating through my chest, I swear my girls can hear it. I am holding my oldest daughter’s hand. In my other hand is her younger sister. I can feel the warm sun beaming down on us as I enter with them into the gym. I bite my lip to keep from crying. This will be the first time I will leave my oldest at the tender age of three in a summer camp. It is for the morning at our local gymnastics center. She is to start pre-school this fall. I know she is ready, but I am not. “

I wrote that in my journal almost three years ago. I remember the feeling that she will not be happy. I though of every excuse to not go. I knew by instinct that she was fine. She loved it so much that she wanted to go again and again. Pre-school was a snap after the gymnastics summer camp trial.

Have you thought of sending your kids to camps? There are many different types and kinds for kids of all ages and diverse needs. There is a contest running at

http://www.pioneercampcontest.com/?purl=A219bc

 

http://www.circlesquareranchcontest.com/?purl=296A13

A chance for a trip for two to Punta Cana! Enter and share on your social networks, like Twitter and Facebook, for more entries every time someone enters from your link! Just cut and paste the PURL you will get in your inbox to each camp. Plus there are great special offer coupons like Mabel’s Labels and discounts off for first-time campers!

While I did receive compensation for this post, the opinions shared are my own.

Enter before June 15th!

 

Motherless: 5 things to honor your mom

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I am walking through the mall with my daughters and see Mother’s Day signage. What should be a happy sight, I feel mixed emotions. Ever since my mom died I have hated Mother’s Day. I’ve tried to make it passable by honoring my grandmothers,  but it wasn’t the same. Now as a mom, I feel I need to participate in the Hallmark holiday.

She is never far from my thoughts. I have been alive longer than her. What started to make the day fun for me was when I began things to honor my mom every day like:

  1. I break out pictures of my childhood and share stories with my daughters. By talking about the good times it reminds me I did have a childhood.
  2. She loved purses. I have some of hers and have added a lot more since. When I get nostalgic I look at my purses and remember playing dress up with them. Sometimes I will go window shop the purse section of department stores. It may seem silly, but it is calming to me.
  3. I watch her favorite movies or television shows. I remember watching The Young and the Restless when I was home from school. The house stopped for that one hour. Watching it today makes me feel close to her.
  4. I give myself permission to grieve. The loss of her will always be here. It comes in fast and furious. A trigger can be small or big depending on the day. When I embrace the pain I get through it.
  5. I work on living each day as it might be the last. I often forget to make each day count. The beauty is when I wake up the next day it is a fresh start.

 

I may be a grown woman but I will always wonder, what if she didn’t have cancer? What if she survived? What if I had a regular childhood that didn’t involve hospitals and wheelchairs?

Looking at my daughters enjoying a mall treat, I know I can drive myself mad wondering  the what if’s. I might live till tomorrow, or not. What matters is honoring my mom while living my life. Being the mom she was is a great gift to give my daughters.

 

5 things they do not tell you in prenatal classes

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I am looking through my girls’ photo books. With every picture I recall snippets of the day each were taken. I see my babies in the various stages of development. I remember the longing for them to grow up so I could understand their needs. The long, long nights of walking with them to lull them to sleep seems ages ago. I read books while I was pregnant to learn what to do. My husband and I attended prenatal classes for our first. All the talks calmed our nerves and filled our brains on what to do. But it really did nothing to prepare us for parenthood. All it did was tell us what contractions were and what to pack for the hospital. It provided nothing about what to do when you bring your baby home. These are 5 things I feel they do not tell you in prenatal classes:

  1. Spoil yourself with downtime while pregnant. Go on a baby moon with your partner: go to the spa, go to the movies on a weekday and most importantly take time for you. It will change drastically when baby comes and you will barely have time to shower.
  2. One thing you may hear is ‘sleep when the baby sleeps.’ It is the truth! It is harder when you have more kids. When it is just you and babe-sleep! Forget the housework.
  3. They do not cover in prenatal what happens when breastfeeding does not happen. They go on and on about it, but never give you the materials and resources for when your milk does not come in. Get yourself informed with all options so you know what to do.
  4. When your family asks what can they do? Tell them! Help in meals, housecleaning and watching the baby so you can nap or shower in peace. It will keep you sane.
  5. Enjoy every moment. They grow so fast. Each stage is one to cherish.

I do love now that my girls are no longer babies. I never had the urge to have kids until I met my daughters. Now they are 3&5 years old and keep me wanting to see what they will do next. Enjoy!

Random Weekend Reads

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Absolution by Patrick Flannery

This book signs late on modern South Africa in the dark shadow of apartheid. An acclaimed elderly author searches for a daughter that looked away to fight for her beliefs.  Sam Leroux has been commissioned to pen Clare Wald’s biography. Sam wonders if she left her walls of isolation down and be honest with him and yourself about his ghosts.

Patrick weaves the plot while surrounds the characters with ricj scenery. You can almost feel the humidity seeping through the city’s armor.

The Sense of an Ending by Julian Barnes

The story takes Tony Webster and his boyhood friends meeting Adrian Finn at school. They steer their way through teen angst adolescence together. Adrian was one of the most generous and most intelligent of the group. They all swear they would be friends for life
The plot fast forwards to Tony at retirement after career and a calm divorce. Then a letter arrives that throws a surprise to his quiet retirement and meeting the past. The writing is fast and furious from past to present and back again.

How Not to Move Back in with Your Parents: The Young Person’s Guide to Financial Empowerment by Rob Carrick
The Boomerang Generation has many young people were moving back in with their parents due to rising costs of student loans than fierce job competition. The book doesn’t preach. It does contain examples from young adults featured in case study interviews. Rob walks you through the wealth of information on financial struggles, paying off student loans, establishing a credit rating and many more financial challenges in a case as you get older. The unique angle in the book is that the author addresses the young person as well as offering tips for parents to help their children established strong financial life skills. I would have liked to have this book and have had this book in my early childhood and many tips for all generations

 

 

Reads for Parents on Autism

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The Out-of- sync Child

recognizing and coping with sensory processing disorder

by Carol Kranowitz, M.A.
Before my youngest daughter was diagnosed last year with autism I was overwhelmed with all of the  books offering advice.  This book helps break down what you can do for your child who might not be on the spectrum but exhibit sensory overload. What really caught my eye was that all of them approaches that are mentioned in the book are drug-free. This is a book for my reference shelf.

The Golden Hat

Taking Back Autism

By Kate Winslet, Margret Ericsdottir, and Keli Thorsteinsson

“Thank you for taking this journey   with us. We hope this book brings a new awareness of the opportunity we have   to help those with autism learn to communicate and realize their ambitions.   People with autism have the potential to achieve great things, but only when   given the appropriate support and education. This is why the Golden Hat   Foundation was formed. All author proceeds from this book go directly to the   Golden Hat Foundation. With your help, we can change the world for people   with autism.”

The book is made up of Kate and Margret’s stories, their personal email   correspondence, and Keli’s poetry. Kate has shared this story with some of   the world’s most famous people, posing the question: “What is important   to you to express?” Their responses are a collection of self-portraits   and their answers to the question

All the author proceeds from this book   will benefit the Golden Hat Foundation, founded by Kate Winslet and Margret   Ericsdottir to build innovative living campuses for people with autism and   raise public awareness of their intellectual capabilities.

 

 

Stay tuned for my review of Carly’s   Voice. A book on autism from the inside!

 

 

 

 

 

 

 

I am a Macaroni Mom

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I am snug in a booth in the food court at the mall. To my right is my three-year-old. To her right is the wall. We are munching on our coffee shop treats. We just dropped her sister at kindergarten. Across from us are a mom and her son. By the sounds of it their snack time it is way different than ours. She is bribing him to eat an apple then she will buy the fries he wants. By the sign of his crossed arms, it is not going well.

I glance at my youngest and am amazed at how lucky I am with my girls. From the time they started solid foods I had given them fresh fruits and vegetables which they eagerly ate. We allowed junk food at birthday parties. My girls didn’t even get chocolate until they were two. Even then it was only for special events.

When I was eight months pregnant with my youngest I had a huge panicked fear-I am neither a cook nor a baker. I am not creative in the kitchen whatsoever. I did know that it was important to get organized in the culinary arts. With a tenacious toddler demanding her favorite foods every day, I got to work. Now we have a family plan for every day of the week to allow moderation while eating healthy.

Macaroni Mondays is a popular day in our house. It is easy to make and there is always clean plates after dinner.

Tim Horton’s Tuesday is a happy day. It is the day for Timbits.

Wednesday is saved for leftovers from the past few days. Dinner is a mesh of foods that guarantee that nothing will be thrown out.

Taco Thursday is a quick, fun night. We either fill up the taco shells or use tortilla chips.

French fry Fridays caps off the week beautifully. It is our pizza and movie night. We all picnic in the living room while watching a family movie.

Weekends are saved for waffles, pancakes or French toast. It is what gets us a few more minutes in bed before having to make breakfast.

While we have themed days, I adapt and change as needed. Sometimes a lasagna or casserole makes its way to the dinner table. I also utilize a local food store called M&M Meat Shop which has an extensive inventory of fresh and frozen meals. When I do cook my limited repertoire, I make large batches. Leftovers are frozen for ‘one of those nights.’ We also make sure our girls have their Iron Kids gummies to balance it out.

I love the time with my daughters instead of burning dinner. Time is too short. One day they will help me in the kitchen, or not even make it home for dinner. I do not feel guilty that I am a poor cook. I am there for them in other ways, French fries and all.

Things people say in the face of Autism

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My shock prevents me to answer the remark a complete stranger just said to me. I am waiting to pick up my oldest from kindergarten. At my feet is my three-year-old daughter who is laughing at a kid next to her. On the outside she looks like a regular kid. On the inside she is different, autistic. The stranger had watched her and walked over to me to say. “Everything happens for a reason.” And sauntered off to get her kid.

I know I should have thicker skin when it comes to remarks like that. I know I should let it roll off my back. I know I shall expect it again. It makes my brain go into what people should say. They are:

5 things Not to Say to an Autism Parent

  1. Everything happens for a reason.
  2. At least the child is healthy.
  3. That must be tough.
  4. Can’t you control your kid? ( or the nasty glances.)
  5. I don’t know how you do it.
  6. This kid is born to you because you are strong and can handle it all.

5 things to say to an Autism Parent

  1. How are you?
  2. Can I babysit sometime?
  3. Your kid is wonderful/smart/delightful.
  4. The world is a better place with your kid in it.
  5. _______________________________________

I wish to put this on a laminated card to hand out when people approach me like that lady. The bell rings and I put a smile on my face to greet my kindergartener. As we race to the playground for some fun, I wonder what the fifth thing that should be on that list.

What would you say to a parent with a child on the spectrum that is positive?

Every Day is Autism Day

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World Autism Awareness Day was last week.  I understand the need to bring awareness to Autism. More and more kids are being diagnosed at a fast pace. As a mom of a three-year-old diagnosed on the spectrum, I wonder when it will ever be Autism Acceptance Day. Even at her tender age my daughter has encountered a lot of ignorance.

So let me talk to you about my daughter:

  1. She loves Doritos. We do use chips as incentive to get her to complete tasks, like puzzles.
  2. She is very compassionate to animals. Some autism ‘experts’ say that is not possible.
  3. My daughter comprehends a vast amount that is communicated to her.
  4. She only has 5 speaking words that you can understand. Hugs are plentiful in our house.
  5. My life would not be the same without her. She reminds us how simple things can bring such joy.

By talking and sharing it can be realized that autism is not a big deal. It does require a lot of therapy to help kids with daily tasks that most learn on their own.

What else would you like to know about autism and/or our life involving autism?

 

Isolation and Labels

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Watching my five-year-old tear around the school playground after school makes me ask myself if I was once that carefree. I realize that I must have begun for the first ten years of my life. I have small memories of after school play dates and skating club parties. That all changed the summer before I entered the sixth grade when mom died.

I remember clearly my first day back to school. I was asked by the teachers to help the librarian while the class continued on. Shortly after, I told the librarian that I had to go to the bathroom. I snuck back to my classroom door and saw the entire class gathered around the teacher. I heard the words, “Her mom died.” Stunned, I went back to the library and was excused to go back to class after an hour.

When I entered the classroom and walked to my desk I could feel all their eyes on me. No one spoke to me or looked at my eyes. From that moment on I had a label, Motherless Child. For the rest of my school years I had a hard time making friends. I still hear the whispers as I passed through the playground about how my mom died. The calls to play diminished fast. I felt like a circus freak.

As I became an adult and began working full time, I made few friends. I felt like I forgot how to make a friendship work. Yes, I had my husband who became my best friend instantly. I also had my younger sister who is still one of my best friends. Yet, as her older sister there is only so much I can dump on her emotionally. I continue spending my life protecting her.

When I became pregnant for the first time, I went into research mode. We have very little family around and I wanted to make sure that my child grew up with people to call friends. I joined a mommy and me group. All the babies were close in age. While on maternity leave we got together several times a week. We have shared a bond in motherhood that stuck through the years.

As our youngest showed global delays, it became harder to meet in groups. She would stick out with her differences, especially in her speech delay.  Her older sister wanted to go do pre-schooler things like water parks and indoor playgrounds. Her younger sister could not handle large crowds. I had to turn down invitations because I could not handle the stress it caused my young one let alone me. I had to watch her every move.

As she was finally getting the assessments for autism more friends faded, just when we needed moral support. I don’t blame them. We just could not do the things ‘normal’ families could do.  And then, magic happened. We made new friends, and new acquaintances became fast friends. They helped in ways they may not have realized. Also, entering the world of autism opened a new support system. Everywhere I looked there was the label of Autism and it felt okay.

My youngest comes over to me wordlessly demanding to be picked up. I scoop her up and look for her big sister.  I see her off on the swings with a school chum. Instead of telling her it’s time to go home, I give her a five minute warning. A compromise. It is so hard to balance both girls’ different needs. The best gift I give them is labelled simple- Love.

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